On the Deb & Detty Show we have an in-depth conversation on Fnd on many different aspects of FND : no set topics ranging from triggers , living by yourself, NDIS and more. For the links to the podcast click on the link below : https://thefndpodcast.simplecast.com/episodes/the-deb-detty-show-9j4rlkpk
the lighter group that Deb had mentioned that she will go to you can check out where is the closest in your area. Please consult with your fnd team first to check if it is right for you.
https://www.meetup.com/en-AU/topics/laughter-club/
Kerris My FND Reality: Deb is referring to her FND Reality: her story is here:
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-keri
The Carer Gateway : Australian Government Initiative. To learn more you can listen to their interview from this podcast episode here:
https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway
and the website link is here:
https://www.carergateway.gov.au/
Blue care offer home assistance which Deb uses here is the link for more information
https://www.bluecare.org.au/home-care
The Red Cross offers a service which calls people on a daily basis to ensure they are okay every day; if the call isn’t answered Red Cross will take action to make sure you’re okay. This can be a temporary service too. It’s called Telecross
https://www.redcross.org.au/get-help/community-services/telecross
Meals on wheels :
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
https://imprintmerch.com.au/collections/lets-have-the-chat