The FND Podcast

My FND Reality| Talking to Kerilyn

Episode Summary

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. Thankyou Kerilyn for talking to us about your amazing journey and sharing with us how we need to be our own advocate. Speak up be heard and persist with our health! For more details and links to this podcast including keris website meditation online or Ryan’s rule click on the link below https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-keri

Episode Notes

Kerri’s music can be found on this website, you can view her videos and purchase her music too: Https://www.kerimcinerney.com

She runs online Meditation classes called. LIGHT OF THE WORLD MEDITATION. at present running  sessions on Wednesday night  . Its run on ZOOM video calls and is a lovely caring group. 

Keri has said that if there is interest in regards to FND & enough FND people she would be happy to specialise in FND issues with techniques to help pain, anxiety, stress etc Cost is $60 for 6 weeks so thats only $10 per session.

If you’re interested to participate in meditation session email keri@kerimcinerney.com for more information.

More information about Ryan’s Rule :

https://clinicalexcellence.qld.gov.au/priority-areas/safety-and-quality/ryans-rule

To Purchase FND Shirts Hoodies and Bags go to website :

https://imprintmerch.com.au/collections/lets-have-the-chat

Proceeds go to FND Australia support services.

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

FND ORGANISATIONS:

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ