Caregivers give so much to us every single day. To most of us with FND they are our lifeline we are indebted to what they do everyday. Yet caregivers go through so much themselves and often they need support too. Carer Gateway is there to support our caregivers, and they can navigate this on their own and access services to help them be better carers their well-being and stay connected. For more information or links to this episode please follow this link https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway
For more information on Carer Gateway
https://www.carergateway.gov.au/
their phone number is 1800 422 737
also join their Facebook page to keep updated and their support groups.
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.