The FND Podcast

The Caregivers Hangout | Keeping Safe

Episode Summary

In this episode join myself and Rod as we talk about keeping your loved one safe and helping them be safe at home. Especially trying to keep them as independent as possible. To access more information on this episode please click on the link below. https://thefndpodcast.simplecast.com/episodes/the-caregivers-hangout-keeping-safe

Episode Notes


In this episode join myself and Rod as we talk about keeping your loved one safe and helping them be safe at home. Especially trying to keep them as independent as possible

To access more information on this episode please click on the link below.

For  more information about making your home safe here is the link with Carer Gateway

https://www.carergateway.gov.au/help-advice/home

Even this is for falls prevention for the elderly this is still valid for falls prevention:

https://www.betterhealth.vic.gov.au/site-5/health/healthyliving/falls-prevention-at-home
Personal Care alarm information from the better health channel:

https://www.betterhealth.vic.gov.au/health/serviceprofiles/personal-alert-victoria-service

Every council provides services or additional services to help those in need in the community. Each council is different to find out what your council provides please contact your individual council.

for more information of what services might be available to you go to:

www.know your council.vic.gov.au

If you’re looking after someone 65 years or older they may be eligible for this service to look for additional services  My Aged Care

https://www.myagedcare.gov.au/

To listen to Rods My FND Reality : his Caregiving story click below

https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney

Carer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :

https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

For more information on Carer Gateway 

https://www.carergateway.gov.au/

their phone number is 1800 422 737

also join their Facebook page to keep updated and their support groups.

For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below

https://www.facebook.com/groups/588224248292396
 

For more information about NDIS checkout Carers Australia @ www.carers australia.com.au

https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/


HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

To listen to our song playlist on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA