Welcome to the new segment where we are here to help support the caregivers who look after us FNDers. As much as it is difficult going through having this condition for most of us who have family and friends who become our permanent carers it is just as difficult if not heartbreaking to go through. With this in mind we hope this segment can help support provide resources and direct you to places of support encouragement and give you friendly voices to listen to, that you’re not alone on this journey. Rod is the son of Deb from the Deb and Detty show he is the caregiver and also now a support worker. Aiming to provide assistance where he can. For more details on this episode please click on the link below:
Welcome to the new segment where we are here to help support the caregivers who look after us FNDers. As much as it is difficult going through having this condition for most of us who have family and friends who become our permanent carers it is just as difficult if not heartbreaking to go through. With this in mind we hope this segment can help support provide resources and direct you to places of support encouragement and give you friendly voices to listen to, that you’re not alone on this journey. Rod is the son of Deb from the Deb and Detty show he is the caregiver and also now a support worker. Aiming to provide assistance where he can.
To listen to Rods My FND Reality : his Caregiving story click below
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney
Carer Gateway is an excellent resource provided by the federal government to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :
https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway
For more information on Carer Gateway
https://www.carergateway.gov.au/
their phone number is 1800 422 737
also join their Facebook page to keep updated and their support groups.
Planning for emergencies especially when it happens to yourself you need to plan for and ensure that your loved one is still looked after. For an emergency care plan and card look to this link below :
https://www.carergateway.gov.au/help-advice/planning
For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below
https://www.facebook.com/groups/588224248292396
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
To listen to our song playlist on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA