The FND Podcast

The Deb & Detty show episode 3

Episode Summary

In this episode of Deb and Detty we go back to talk about Chuckys episode of My FND reality. We talk about our experiences that can relate to Chuckys FND. Fnd self care and spreading awareness.

Episode Notes

to listen to Chuckys my fnd reality :

https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-chucky

Latest research on fnd brings hope: study on the cause of fnd

https://www.eurekalert.org/pub_releases/2021-03/uoy-nrr031521.php

And 

https://www.google.com.au/amp/s/www.news-medical.net/amp/news/20210316/Researchers-identify-a-possible-cause-of-functional-neurological-disorder.aspx?fbclid=IwAR31fhr6DDupfWkYiPPW2Tjl5uIx8ob7_iYPD3LcWfx0_CbKgAbK29KYJOQ

the functional mri and fnd :

https://www.itnonline.com/content/imaging-study-provides-new-biological-insights-functional-neurological-disorder

and the need for continual studies and research into fmri and fnd 

https://www.sciencedirect.com/science/article/pii/S221315822100067X

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

www.neurosymptoms.org

Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.

FND ORGANISATIONS:

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

if you are interested in FND Merchandise to support FND Australia support services by Friends of FND

https://imprintmerch.com.au/collections/lets-have-the-chat