The FND Podcast

My FND Reality | Talking to Chucky

Episode Summary

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. Chucky is such an amazing person he’s taking charge of his Fnd. We learn where he started of how he came to work with his FND and he shares why we need to raise awareness with FND. His story his words. Thankyou Chucky for sharing your story. You’re incredible! #voices4Fnd #friendsofFND #FNDwarrior #FNDaware To Purchase his amazing FND Shirts Hoodies and Bags go to his website : https://imprintmerch.com.au/collections/lets-have-the-chat Proceeds go to FND Australia support services. For all resources and links to this podcast please go to website episode linked to this podcast or visit : https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-chucky Https://thefndpodcast.simplecast.com Thankyou again Chucky!

Episode Notes

 

To Purchase his amazing FND Shirts Hoodies and Bags go to his website :

https://imprintmerch.com.au/collections/lets-have-the-chat

Proceeds go to FND Australia support services.

 

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/