The FND Podcast

The JJsegment | the circle of life , death pregnancy & fnd

Episode Summary

On this episode with the JJ segment Jess shares the tragedy that many of us in pandemic times across the globe have faced and experienced. Also part of the JJsegment is the first part of the pregnancy series of the fnd podcast where I share what was said in regards to fnd & pregnancy with an amazing high risk ob gyn. Follow Jess @functionallyjess

Episode Notes

On this episode with the JJ segment Jess shares the tragedy that many of us in pandemic times across the globe have faced and experienced. Also part of the JJsegment is the first part of the pregnancy series of the fnd podcast where I share what was said in regards to fnd & pregnancy with an amazing high risk ob gyn. Follow Jess @functionallyjess

Links to check out:

Grieving and loss in a time of covid and pandemic is absolutely different. So coping with grief and ways of coping are different too. the link below is from beyond blue which gives us a rundown of what we could do to help in regards to grief and pandemic times.

https://coronavirus.beyondblue.org.au/managing-my-daily-life/coping-with-grief-and-loss/grieving-the-loss-of-a-loved-one-during-the-coronavirus-pandemic.html


To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

https://www.neurokid.co.uk/

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd 

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf


FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND