On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk
On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk
FND ACTION UK : FND AWARENESS DAY
https://www.fndaction.org.uk/fnd-awareness-day-uk/
Click on the link to participate
Including two paediatric consultants in FND: if you are a parent and would like to participate especially you're more than welcome to join and ask questions.
Inform the doctor:
https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/
INTERVIEWS AND ARTICLES:
Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqko
GB News https://youtu.be/8EMspXvKWd8
I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655
FND : Tiktok
https://www.tiktok.com/tag/fnd?lang=en
FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor
Music:
Sam Barsh Yellow Letter
Sam Bars Hope Springs Internal
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
A website for young people and families living with NEAD and neurological symptom
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
FND TOGETHER:
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/
Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly Findlay
Activist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie Butler
Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg Jacks
She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch Lady
She’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Haden
she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/