This is the first panel on the Deb and detty show let alone the fnd podcast with detty. Here we talk to Deb, Chucky and our special guest Fleur as we talk about FND , Ryan’s rule and all things FND.
In Queensland Ryan’s rule can be utilised if you have concerns that you are not being heard. Ryan's Rule
Ryan’s Rule assists you to get help when you are concerned about a patient in hospital who is getting worse or not improving. All CQ Health hospitals and services fully support this initiative. This actually should be in all states. Only so far in Queensland.
https://www.health.qld.gov.au/cq/patients-and-visitors/your-rights-and-responsibilities/ryans-rule
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND