On this episode Deb discusses the processes of moving out but also living alone with FND. How she stays safe with FND. To find out more details about anything discussed on today’s episode head over to today’s link : https://thefndpodcast.simplecast.com/episodes/the-deb-detty-show-nik15jxl
The Red Cross offers a service which calls people on a daily basis to ensure they are okay every day; if the call isn’t answered Red Cross will take action to make sure you’re okay. This can be a temporary service too. It’s called Telecross
https://www.redcross.org.au/get-help/community-services/telecross
Personal mobile alarms are another good way to keep safe. When you have emergency you activate the alarm it contacts your emergency contacts and nowadays even alerts your whereabouts and sometimes emergency services.
smartphones with fall detection features also are much like personal Mobile alarms :
https://www.medicalalertadvice.com/articles/apple-watch-fall-detection/
For those with Telstra: priority assist is available for you if it is necessary that you have an available phone line 24/7 and you have a medical condition
and last but not least there are laughter groups! We will be hearing more from Deb how it went however if you’re keen to find out where one is in your area . Apparently good for your mind and emotionally aswell. There is such a thing as laughter yoga.
https://www.meetup.com/en-AU/topics/laughter-club/
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
https://imprintmerch.com.au/collections/lets-have-the-chat