The FND Podcast

The Deb & Detty Show episode 2

Episode Summary

Join us this episode as we talk more about FND. what’s available out there in regards to disability, applying for help with Centrelink NDIS and other services out there. All resources and links mentioned are found in the details of this podcast or can be found in the episodes details website : https://thefndpodcast.simplecast.com/episodes/the-deb-detty-show-episode-2

Episode Notes


Services Australia : Australian Government:

People with disability : government website

Payments and services for you, your family or carers, if you have an illness, injury or disability. A website that has all the information to search here. 
https://www.servicesaustralia.gov.au/individuals/people-disability

disability services Australia:

Disability Services in VIC
https://services.dhhs.vic.gov.au/disability '

Disability Services in NSW

https://www.nsw.gov.au/living-nsw/government-services/disability-services

Disability services in QLD

https://www.qld.gov.au/disability

Disability services in TAS:

http://www.health.tas.gov.au/service_information/services_files/acrod_tasmanian_division

Disability services in NT:

https://nt.gov.au/wellbeing/disability-services

Disability services in WA:

http://www.disability.wa.gov.au/

Disability services in SA:

https://www.sa.gov.au/topics/care-and-support/disability

central Australia support services :

https://www.casa.net.au

Disability services in ACT:

https://www.communityservices.act.gov.au/disability_act

National disability service :

As Australia’s peak body for non-government disability service organisations, NDS is the only organisation that supports the full spectrum of disability service providers across Australia. Our members range in size from small support groups to large multi-service organisations. Collectively, NDS members operate several thousand services for Australians with all types of disability

latest news updates training resources

www.ndis.org.au

for those in central Australia aboriginal wanting to get help getting onto ndis : congress ndis team 

https://www.caac.org.au/ndis

Local Area Co ordination LAC in NDIS:

 https://www.ndis.gov.au/understanding/what-ndis/whos-rolling-out-ndis/lac-partners-community

Centrelink disability : Australia 

Information for disability pension :Financial help if you have a permanent physical, intellectual or psychiatric condition that stops you from working.

https://www.servicesaustralia.gov.au/individuals/services/centrelink/disability-support-pension

ph: 132 717

NDIS

There are around 4.3 million Australians who have a disability. Within the next five years, the National Disability Insurance Scheme (NDIS) will provide more than $22 billion in funding a year to an estimated 500,000 Australians who have permanent and significant disability. For many people, it will be the first time they receive the disability support they need.

The NDIS can provide all people with disability with information and connections to services in their communities such as doctors, sporting clubs, support groups, libraries and schools, as well as information about what support is provided by each state and territory government.

https://www.ndis.gov.au/
ph: 1800 800 110

Carer Card Program

A collaboration between the government, businesses and the community.

To be eligible for a Carer Card you must be a resident of Victoria and either:

You can confirm your eligibility by:

Professional carers that receive a wage for providing care are not eligible. To find out if you are eligible or to be sent an application form contact the Carer Card team by email on carercard@dhhs.vic.gov.au or call 1800 901 958.
Vic:
https://www.carercard.vic.gov.au/

Companion Card

A card for people with significant and permanent disability who have a lifelong need for a high level of support to participate in community events and activities. The card allows a person’s carer free entry into participating venues and events.

https://www.companioncard.vic.gov.au/

Taxi subsidy scheme:

ACT:

https://www.revenue.act.gov.au/community-assistance/taxi-subsidy-scheme

NT:

https://nt.gov.au/driving/public-transport-cycling/help-getting-around/transport-subsidy-and-incentive-schemes


Qld

https://www.qld.gov.au/disability/out-and-about/subsidies-concessions-passes/taxi-subsidy


SA

https://sacommunity.org/org/203090-South_Australian_Transport_Subsidy_Scheme

WA

https://www.mycommunitydirectory.com.au/Outlet/145898/Western_Australia_Department_of_Transport_-_Taxi_Users_Subsidies_Scheme

TAS

https://www.transport.tas.gov.au/public_transport/concessions/taxi_subsidy_program
 

VIC:

https://www.carersvictoria.org.au/carer-benefits/half-priced-taxi-card


NSW:

https://transportnsw.info/travel-info/ways-to-get-around/taxi-hire-vehicle/taxi-subsidy-scheme

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

HTTPS://www.neurosymptoms.org

Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.

FND ORGANISATIONS:

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is:

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

if you are interested in FND Merchandise to support FND Australia support services by Friends of FND

https://imprintmerch.com.au/collections/lets-have-the-chat