Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. Tiarne is a wonderful wife and mother. From being diagnosed she goes through what it’s like to have fnd and family, and why there is a need for FND awareness. She let’s us know that FND shouldn’t stop us from achieving what we need to do as she also embarks on studying to utilise her lived experience to help others. Thankyou Tiarne you’re amazing #voices4Fnd #FNDwarrior #FNDaware For all resources and links to this podcast please go to website episode linked to this podcast or visit : https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-tiarne
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
HTTPS://www.neurosymptoms.org
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
FND Shirts Hoodies and Bags go to friends of FND :
https://imprintmerch.com.au/collections/lets-have-the-chat
Proceeds go to FND Australia support services.