Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. Sara Thankyou so much for talking to me and for being the first for us to talk to from across the other side of the world. I realise that our issues with FND span the world. I’m so inspired by what you are doing and cheering you on. Empowering people to be the best with what they have is amazing. Go Sara! And Thankyou xo To follow the links to this podcast please follow this link https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-sara To follow her on Instagram @managingchronic https://managingchronic.com/
Sara from managing chronic check out her website and coaching and blog here
again @managingchronic on Instagram
She is just amazing also
Chroniclly capable is an organisation which is bridging the gap between organisations and those with chronic illness & / disability and placing people with work removing the stigma and fear. To find out more :
https://www.wearecapable.org/about
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.