The FND Podcast

My FND Reality | Talking to Leanne

Episode Summary

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. Thankyou Leanne for talking with me. For being Amazing and sharing your fnd lived experience especially how you turned your negative experience into a teachable experience that others will benefit from, health professionals are learning from. You are a creative, an fnd warrior and I’m humbled and grateful for knowing you and for your time talking with us. For more information and links to this episode please click on the link below https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-leanne

Episode Notes

Headspace is an app that you can utilise to help create mindfulness for everyday life : mindfulness and meditation.  you can find this on the App Store.

https://www.headspace.com/headspace-meditation-app

Intresting enough mental health support is available for young people aged 12-25 headspace online click here on this link for more information;

https://headspace.org.au/

leannes art will be featured on the fnd podcast Instagram.  Check it out shes an amazing artist

The YouTube video of the song performed by the choir this is me that included Leanne and myself:

https://www.youtube.com/watch?v=hf7CdLJeyXM

To Purchase FND Shirts Hoodies and Bags go to website :

https://imprintmerch.com.au/collections/lets-have-the-chat

Proceeds go to FND Australia support services.

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

FND ORGANISATIONS:

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ