Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. In this episode of My FND Reality we talk to Jasmine who is 14 years old who has FND and her Mum Keri. They go through their journey and what their life is like with FND. I am so grateful and appreciate their time to speak out about their journey, and what their reality is like. Everyone’s FND is very different and theirs is, we are supportive of you and wish you all the love and support. Links for this episode can be found here : https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-jasmin-kerri
Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.
In this episode of My FND Reality we talk to Jasmin who is 14 years old who has FND and her Mum Keri. They go through their journey and what their life is like with FND. I am so grateful and appreciate their time to speak out about their journey, and what their reality is like. Everyone’s FND is very different and theirs is, we are supportive of you and wish you all the love and support.
follow Jasmine on TikTok on @jazz-x-7
LINKS AND INFORMATION TO CHECK OUT:
Jasmine and Keri Ann experience in essential kids article ninemsn.com.au
Information on NEAD: Pdf on how to manage your Nead
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
To listen to our song playlist started by our lovely Maggie on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND.