This episode does contain explicit and sensitive subjects only 18 years and older should listen to. Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. Thankyou Jamarla for speaking with us for also raising awareness of Dissociative identity disorder and Thankyou Tonya. You have been so brave and courageous in sharing your story with us . https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-jamarla
This episode does contain explicit and sensitive subjects only 18 years and older should listen to.
Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.
Thankyou Jamarla for speaking with us for also raising awareness of Dissociative identity disorder and Thankyou Tonya. You have been so brave and courageous in sharing your story with us .
If you are experiencing feelings of depression hopelessness pain, if you notice changes in your sleep or eating and thoughts , if you notice a change in the usual activities that you are interested in or usually do or have thoughts of suicide please talk to someone , notify your gp, your medical team let someone know. Reach out to someone.
In Australia:
Lifeline: 13 11 14
Beyond blue: 1300 22 4636
Headspace
Immediate danger : 000
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.