Join me as we talk to others with FND in the community as they share their time, their experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. This is Part 2 of Fleur’s My FND reality and she is the meaning of what it is to fight be brave and to advocate for yourself. When asked what message does she have for other FNDers listening to the podcast she gives out gems worth listening to. Thankyou so much Fleur for inspiring and talking to us on the FND Podcast.
Join me as we talk to others with FND in the community as they share their time, their experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.
This is Part 2 of Fleur’s My FND reality and she is the meaning of what it is to fight be brave and to advocate for yourself. When asked what message does she have for other FNDers listening to the podcast she gives out gems worth listening to. Thankyou so much Fleur for inspiring and talking to us on the FND Podcast.
To listen to the first part of Fleur’s My FND Reality
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-fleur
To find out more about Ryan’s Rule click on this link
https://www.health.qld.gov.au/cq/patients-and-visitors/your-rights-and-responsibilities/ryans-rule
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
To listen to our song playlist on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA