In this Episode of Maggies Corner it’s actually different from the usual episodes. Trigger warning it contains actual sound recordings of both Maggie and myself in our own FND Flares. We also discuss our experience during the recording aswell as our experience of how we handle our flares. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative
In this Episode of Maggies Corner it’s actually different from the usual episodes. Trigger warning it contains actual sound recordings of both Maggie and myself in our own FND Flares. We also discuss our experience during the recording aswell as our experience of how we handle our flares. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative
Part of looking after yourself within a flare is self care this article I found interesting;
https://thrivingwhiledisabled.com/self-care-with-fnd/
fnd action has a whole section called you matter which deals With a lot of areas within fnd that can help with self care
https://www.fndaction.org.uk/you-matter/
apps to checkout to help meditation : insight or headspace.
To listen to our song playlist started by our lovely Maggie on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
A website for young people and families living with NEAD and neurological symptom
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND