In this episode our lovely Maggie is still in Quarantine. Yet despite being in Quarantine and stuck in the situation she still shows up to talk about FND, answers some questions from you guys the listeners and amplifys others in the community. What an amazing lady! Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative https://thefndpodcast.simplecast.com/episodes/maggies-corner-questions-quarantine-the-fnd-podcast-with-detty
In this episode our lovely Maggie is still in Quarantine. Yet despite being in Quarantine and stuck in the situation she still shows up to talk about FND, answers some questions from you guys the listeners and amplifys others in the community. What an amazing lady! follow Maggie on Instagram @Maggie.Chapman
Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative
To listen to our song playlist started by our lovely Maggie on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
LINKS AND INFORMATION TO CHECK OUT:
Information on NEAD: Pdf on how to manage your Nead
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
We talked a little about Medibands you can customise your own to suit you
https://www.mediband.com/au/
In Emergency situations for those with Apple phones here’s how to access Medical ID information to contacting emergency contacts and even emergency numbers
https://support.apple.com/en-au/HT208076
The myFND App
myFND, has been launched to support people with Functional Neurological Disorder (FND) to understand and manage their symptoms. Supported by St George's Hospital Charity and St George's NHS FT, the app has been launched by Consultant Neuropsychiatrist, Dr Chris Symeon. You can find it at any App Store.
https://myfnd.co.uk/
for more information about the fnd app
AMPLIFYING:
Meg Jacks
TICTOK account : @ Megjacks
follow her on Instagram @Meg.Jacks_
She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND. She is amazing, check her out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND.