In this episode I have to apologise sound quality is not great: issues with reception and recording technical issues. Despite this Maggie talked about spoon theory, her experience in travelling with FND and tips and things to be aware of. Also we are Amplifying Sophie Butler. follow Maggie on Instagram @Maggie.Chapman For more information on this episode see the link below https://thefndpodcast.simplecast.com/episodes/maggies-corner-quarantine-in-qld-travel
In this episode I have to apologise sound quality is not great: issues with reception and recording technical issues. Despite this Maggie talked about spoon theory, her experience in travelling with FND and tips and things to be aware of. Also we are Amplifying Sophie Butler.
follow Maggie on Instagram @Maggie.Chapman
Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative
To listen to our song playlist started by our lovely Maggie on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
LINKS AND INFORMATION TO CHECK OUT:
What’s Spoon Theory?
“The Spoon Theory”, a personal story by Christine Miserandino, is popular among many people dealing with chronic illness. It describes perfectly this idea of limited energy, using “spoons” as a unit of energy.
https://www.healthline.com/health/spoon-theory-chronic-illness-explained-like-never-before#1
If you are looking to travel here are some links to consider but please do your research on what each of your airlines offer for example heres what Qantas offers https://www.qantas.com/au/en/travel-info/specific-needs.html
Here’s some other Links on travelling with disabilities
https://www.smartraveller.gov.au/before-you-go/health/disability
https://www.flightcentre.com.au/flights/planning-your-flight/disabilities
https://www.scopeaust.org.au/blog/disability-advice/tips-for-travelling-with-a-disability/
Would you like to travel after the pandemic but have no ideas where to start? Travability might give you some ideas. Travability’s mission is to be agents of change; to inspire people who have never traveled before to do so, and to inspire others to do more. To encourage all cultures of the world to see disability as an integral part of life, and to provide the motivation and tools to the tourism industry to allow them to create accessible environments that enable inclusion in an economically sustainable way.
http://travability.travel/tours
AMPLIFYING:
Sophie Butler
follow her on Instagram @sophjbutler
Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude. Has a YouTube channel go check her out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. \