On this episode Maggie is back in Melbourne and out of quarantine. We talk about her travel experience coming back home and all things fnd. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative https://thefndpodcast.simplecast.com/episodes/maggies-corner-back-home-in-melbourne-the-fnd-podcast-with-detty
On this episode Maggie is back in Melbourne and out of quarantine. We talk about her travel experience coming back home and all things fnd. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative
To listen to our song playlist started by our lovely Maggie on Spotify click on the link below I have already added Get Happy by Ella Fitzgerald.
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
LINKS AND INFORMATION TO CHECK OUT:
Listenable podcast: amazing podcast to listen to ! Here are some more to also listen to in regards to disability and travelling too
https://www.travelwithoutlimits.com.au/podcasts-about-disability-and-travel/
If you are looking to travel here are some links to consider but please do your research on what each of your airlines offer for example heres what Qantas offers https://www.qantas.com/au/en/travel-info/specific-needs.html
Here’s some other Links on travelling with disabilities
https://www.smartraveller.gov.au/before-you-go/health/disability
https://www.flightcentre.com.au/flights/planning-your-flight/disabilities
https://www.scopeaust.org.au/blog/disability-advice/tips-for-travelling-with-a-disability/
Tip of the tongue
https://www.verywellmind.com/lethologica-tip-of-the-tongue-phenomenon-4154947
Example of the 5 second game
AMPLIFYING:
Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation. Follow him on Instagram @thedisabledhippie
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND.