Today on the JJ segment Jess talks about her journey throughout the week with her mental health. We also touch on other issues with FND In relation to Dystonia, safety, being sure to advocate for yourself when you have other issues other than FND and caregivers. Be sure to follow Jess on Instagram @functionallyjess
Be sure to follow Jess on Instagram @functionallyjess
How do you get you get up safely from a fall?
YouTube video with two physiotherapists explaining how
Lets talk about Dystonia:
https://www.neurosymptoms.org/functional-dystonia/4594358007
FunctionalLenny has a great video on dystonia
If you are experiencing feelings of depression hopelessness pain, if you notice changes in your sleep or eating and thoughts , if you notice a change in the usual activities that you are interested in or usually do or have thoughts of suicide please talk to someone , notify your gp, your medical team let someone know. Reach out to someone.
In Australia:
Lifeline: 13 11 14
Beyond blue: 1300 22 4636
Headspace
Immediate danger : 000
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
https://imprintmerch.com.au/collections/lets-have-the-chat